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Resource:FRAXA Research Foundation

Name: Resource:FRAXA Research Foundation
Description: FRAXA's mission is to accelerate progress toward effective treatments and ultimately a cure for Fragile X, by directly funding the most promising research. FRAXA also supports families affected by Fragile X and raises awareness of this important but relatively unknown disease.

FRAXA was founded in 1994 by three parents of children with Fragile X, Katie Clapp, Michael Tranfaglia MD, and Kathy May, to support scientific research aimed at finding a treatment and a cure for Fragile X. Fragile X research is drastically underfunded, considering its high prevalence, prospects for a cure, and the promise that this research holds for advancing understanding of other disorders like autism, Alzheimer's disease, and X-linked mental retardation.

FRAXA funds grants and fellowships at universities all over the world. We have funded more than $17 million dollars in top-notch science. FRAXA's management expenses have always been just 4% or less of income, as we have just one full-time staff, three part time staff, and hundreds of volunteer parents. Since FRAXA was founded, the Fragile X field has grown tremendously, due in large part to our grass-roots efforts. You can help us accomplish much more.

FRAXA is a 501c3 tax-exempt organization; Tax ID 04-3222167
Other Name(s): FRAXA
Abbreviation: FRAXA
Resource Type(s): Disease-related portal, Funding resource
Resource: Resource
URL: http://www.fraxa.org
Id: nif-0000-30561
Related condition/disease: Fragile X syndrome
Address: FRAXA Research Foundation, 10 Prince Place, Newburyport, MA 01950 Phone: (978) 462-1866
Keywords: Research, treatment, cure
Link to OWL / RDF: Download this content as OWL/RDF

Curation status: Curated

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Notes

This page uses this default form:Resource

News

| Twitter Handle: @FRAXAresearch

Contributors

Aarnaud, Ccdbuser, Nifbot2



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Facts about Resource:FRAXA Research FoundationRDF feed
AbbrevFRAXA  +
AddressFRAXA Research Foundation  +, 10 Prince Place  +, Newburyport  +, and MA 01950 Phone: (978) 462-1866  +
CurationStatuscurated  +
DefiningCitationhttp://www.fraxa.org  +
DefinitionFRAXA's mission is to accelerate progress FRAXA's mission is to accelerate progress toward effective treatments and ultimately a cure for Fragile X, by directly funding the most promising research. FRAXA also supports families affected by Fragile X and raises awareness of this important but relatively unknown disease.

FRAXA was founded in 1994 by three parents of children with Fragile X, Katie Clapp, Michael Tranfaglia MD, and Kathy May, to support scientific research aimed at finding a treatment and a cure for Fragile X. Fragile X research is drastically underfunded, considering its high prevalence, prospects for a cure, and the promise that this research holds for advancing understanding of other disorders like autism, Alzheimer's disease, and X-linked mental retardation.

FRAXA funds grants and fellowships at universities all over the world. We have funded more than $17 million dollars in top-notch science. FRAXA's management expenses have always been just 4% or less of income, as we have just one full-time staff, three part time staff, and hundreds of volunteer parents. Since FRAXA was founded, the Fragile X field has grown tremendously, due in large part to our grass-roots efforts. You can help us accomplish much more.

FRAXA is a 501c3 tax-exempt organization; Tax ID 04-3222167
tax-exempt organization; Tax ID 04-3222167
ExampleImageFRAXA.PNG  +
Has default formThis property is a special property in this wiki.Resource  +
Has roleDisease-related portal  +, and Funding resource  +
Idnif-0000-30561  +
KeywordsResearch  +, Treatment  +, and Cure  +
LabelResource:FRAXA Research Foundation  +
ModifiedDate12 October 2012  +
Page has default formThis property is a special property in this wiki.Resource  +
Related diseaseFragile X syndrome  +
SuperCategoryResource  +
SynonymFRAXA  +
TwitterFRAXAresearch  +