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Resource:Immune Deficiency Foundation

Name: Resource:Immune Deficiency Foundation
Description: National non-profit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. One of the greatest challenges faced by individuals diagnosed with primary immunodeficiency disease is finding the right information and resources when they need it. With knowledge and foresight from their personal experience, the Immune Deficiency Foundation (IDF) was founded by families of children with primary immunodeficiency diseases and their physicians to help meet those needs. It is with the spirit and energy of this keen perspective that IDF exists today, thriving as an organization dedicated to individuals living with primary immunodeficiencies.

Since 1980, IDF has provided accurate and timely information for the nearly quarter-million Americans who have been diagnosed with a primary immunodeficiency disease. Governed by a Board of Trustees – and supported by a Medical Advisory Committee comprised of some of the world’s leading clinical immunologists, as well as hundreds of grassroots volunteers and a compassionate, professional staff – IDF has provided individuals and their families with vital knowledge and made tremendous strides in:

  • Helping the patient and medical community gain a broader understanding of primary immunodeficiency diseases through education and outreach efforts;
  • Promoting, participating, and funding research that has helped characterize primary immunodeficiency diseases and given patients and physicians substantially improved treatment options;
  • Addressing patient needs through public policy programs by focusing on issues such as insurance reimbursement, patient confidentiality, ensuring the safety and availability of immune globulin therapy, and maintaining and enhancing patient access to treatment options.
Today, thousands of individuals and families affected by primary immunodeficiency diseases depend on IDF for advocacy, education and empowerment.
Resource Type(s): Disease-related portal, Funding resource
Keywords: Child, Young human
Abbreviation: IDF
Resource: Resource
URL: http://primaryimmune.org/
Related condition/disease: Primary immunodeficiency disease, Immunodeficiency disease
Address: Immune Deficiency Foundation, 40 West Chesapeake Avenue, Suite 308, Towson, Maryland 21204 Phone: 1-800-296-4433
Id: nlx_143860
Organism: Human
Link to OWL / RDF: Download this content as OWL/RDF

Parts of Resource:Immune Deficiency Foundation

Curation status: Curated

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Contributors

Aarnaud, Ccdbuser

Pages in category "Resource:Immune Deficiency Foundation"

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Facts about Resource:Immune Deficiency FoundationRDF feed
AbbrevIDF  +
AddressImmune Deficiency Foundation  +, 40 West Chesapeake Avenue  +, Suite 308  +, Towson  +, and Maryland 21204 Phone: 1-800-296-4433  +
CurationStatuscurated  +
DefiningCitationhttp://primaryimmune.org/  +
DefinitionNational non-profit patient organization d National non-profit patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. One of the greatest challenges faced by individuals diagnosed with primary immunodeficiency disease is finding the right information and resources when they need it. With knowledge and foresight from their personal experience, the Immune Deficiency Foundation (IDF) was founded by families of children with primary immunodeficiency diseases and their physicians to help meet those needs. It is with the spirit and energy of this keen perspective that IDF exists today, thriving as an organization dedicated to individuals living with primary immunodeficiencies.

Since 1980, IDF has provided accurate and timely information for the nearly quarter-million Americans who have been diagnosed with a primary immunodeficiency disease. Governed by a Board of Trustees – and supported by a Medical Advisory Committee comprised of some of the world’s leading clinical immunologists, as well as hundreds of grassroots volunteers and a compassionate, professional staff – IDF has provided individuals and their families with vital knowledge and made tremendous strides in:

  • Helping the patient and medical community gain a broader understanding of primary immunodeficiency diseases through education and outreach efforts;
  • Promoting, participating, and funding research that has helped characterize primary immunodeficiency diseases and given patients and physicians substantially improved treatment options;
  • Addressing patient needs through public policy programs by focusing on issues such as insurance reimbursement, patient confidentiality, ensuring the safety and availability of immune globulin therapy, and maintaining and enhancing patient access to treatment options.
Today, thousands of individuals and families affected by primary immunodeficiency diseases depend on IDF for advocacy, education and empowerment.
F for advocacy, education and empowerment.
ExampleImageIDF.PNG  +
Has default formThis property is a special property in this wiki.Resource  +
Has roleDisease-related portal  +, and Funding resource  +
Idnlx_143860  +
KeywordsChild  +, and Young human  +
LabelResource:Immune Deficiency Foundation  +
ModifiedDate2 July 2013  +
Page has default formThis property is a special property in this wiki.Resource  +
Related diseasePrimary immunodeficiency disease  +, and Immunodeficiency disease  +
SpeciesHuman  +
SuperCategoryResource  +