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Category:Resource:Ataxia-Telangiectasia Childrens Project
CurationStatus curated  +
DefiningCitation  +
Definition <br /> The Ataxia Telangiectasia Ch <br /> The Ataxia Telangiectasia Children's Project, better known as the A-T Children's Project, was founded in late 1993 by a family in Florida with two young sons who have A-T. It is a public, tax-exempt, non-profit organization pursuant to Section 501(c)(3) of the Internal Revenue Code, and all gifts and donations to the Project are tax deductible. The A-T Children's Project was formed to raise funds through events and contributions from corporations, foundations and friends. These funds are then used to accelerate first-rate, international scientific research aimed at finding a cure and improving the lives of all children with ataxia-telangiectasia.<br /> - To encourage and support excellent laboratory research which will accelerate the discovery of a cure or possible therapies for ataxia-telangiectasia by:<br /> - awarding competitive research grants to top scientists using a peer-review board comprised of top scientists and physicians,<br /> - organizing and sponsoring workshops and symposiums in order to encourage cooperation among laboratories and to generate new research strategies, and<br /> - working with Congress and the National Institutes of Health to encourage the funding of active research on A-T by agencies of the U.S. government.<br /> - To improve the accurate and timely diagnosis of A-T patients by increasing public awareness and by educating physicians.<br /> - To develop and maintain an international patient registry of A-T patients with objective, neutral oversight, while leaving ultimate control in the hands of treating physicians, so that up-to-date clinical information about A-T patients can be obtained for researchers and so that when a treatment is developed, all patients can be reached through their physicians.<br /> - To support and oversee a clinical center and information clearinghouse at a top-rated, world-class medical center for the evaluation of A-T patients by a multidisciplinary team of specialists, and for the accumulation of experience in managing the many facets of A-T such as the ataxia, cancer and immune problems.<br /> - To develop quantitative endpoints for objectively measuring the progression rate and severity of the symptoms of A-T.<br /> - To maintain and enlarge a tissue/cell bank with objective, neutral oversight and control in order to ensure free access of existing and new researchers to A-T patient specimens.<br /> Sponsors: The A-T Children's Project is a non-profit organization that raises funds to support and coordinate first-rate biomedical research projects, scientific conferences and a clinical center aimed at finding a cure or life-improving therapies for ataxia-telangiectasia, a lethal genetic disease that attacks children, causing progressive loss of muscle control, immune system problems, and a strikingly high rate of cancer, especially leukemia and lymphoma.<br /> ecially leukemia and lymphoma.<br />
Has default formThis property is a special property in this wiki. Resource  +
Has role Disease-related portal +
Id nif-0000-10158  +
Is part of A-T Cure Team +
Keywords Education +, Funding resource +, Ataxia +, Ataxia telangiectasia +, Cancer +, Cell +, Cure +, Immune +, International +, Laboratory +, Physician +, Research +, Scientific +, Scientist +, Telangiectasia +, Tissue +, Tissue bank +
Label Resource:Ataxia-Telangiectasia Childrens Project  +
Modification dateThis property is a special property in this wiki. 20 June 2013 23:54:22  +
ModifiedDate 20 June 2013  +
Page has default formThis property is a special property in this wiki. Resource  +
SuperCategory Resource  +
Synonym A-T Children's Project  +
Categories Resource
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