arrow

From NeuroLex

Jump to: navigation, search
Category:Resource:Ataxia-Telangiectasia Childrens Project
CurationStatus curated  +
DefiningCitation http://www.communityatcp.org/Page.aspx?pid=1200  +
Definition <br /> The Ataxia Telangiectasia Ch <br /> The Ataxia Telangiectasia Children's Project, better known as the A-T Children's Project, was founded in late 1993 by a family in Florida with two young sons who have A-T. It is a public, tax-exempt, non-profit organization pursuant to Section 501(c)(3) of the Internal Revenue Code, and all gifts and donations to the Project are tax deductible. The A-T Children's Project was formed to raise funds through events and contributions from corporations, foundations and friends. These funds are then used to accelerate first-rate, international scientific research aimed at finding a cure and improving the lives of all children with ataxia-telangiectasia.<br /> - To encourage and support excellent laboratory research which will accelerate the discovery of a cure or possible therapies for ataxia-telangiectasia by:<br /> - awarding competitive research grants to top scientists using a peer-review board comprised of top scientists and physicians,<br /> - organizing and sponsoring workshops and symposiums in order to encourage cooperation among laboratories and to generate new research strategies, and<br /> - working with Congress and the National Institutes of Health to encourage the funding of active research on A-T by agencies of the U.S. government.<br /> - To improve the accurate and timely diagnosis of A-T patients by increasing public awareness and by educating physicians.<br /> - To develop and maintain an international patient registry of A-T patients with objective, neutral oversight, while leaving ultimate control in the hands of treating physicians, so that up-to-date clinical information about A-T patients can be obtained for researchers and so that when a treatment is developed, all patients can be reached through their physicians.<br /> - To support and oversee a clinical center and information clearinghouse at a top-rated, world-class medical center for the evaluation of A-T patients by a multidisciplinary team of specialists, and for the accumulation of experience in managing the many facets of A-T such as the ataxia, cancer and immune problems.<br /> - To develop quantitative endpoints for objectively measuring the progression rate and severity of the symptoms of A-T.<br /> - To maintain and enlarge a tissue/cell bank with objective, neutral oversight and control in order to ensure free access of existing and new researchers to A-T patient specimens.<br /> Sponsors: The A-T Children's Project is a non-profit organization that raises funds to support and coordinate first-rate biomedical research projects, scientific conferences and a clinical center aimed at finding a cure or life-improving therapies for ataxia-telangiectasia, a lethal genetic disease that attacks children, causing progressive loss of muscle control, immune system problems, and a strikingly high rate of cancer, especially leukemia and lymphoma.<br /> ecially leukemia and lymphoma.<br />
Has default formThis property is a special property in this wiki. Resource  +
Has role Disease-related portal +
Id nif-0000-10158  +
Is part of A-T Cure Team +
Keywords Education +, Funding resource +, Ataxia +, Ataxia telangiectasia +, Cancer +, Cell +, Cure +, Immune +, International +, Laboratory +, Physician +, Research +, Scientific +, Scientist +, Telangiectasia +, Tissue +, Tissue bank +
Label Resource:Ataxia-Telangiectasia Childrens Project  +
Modification dateThis property is a special property in this wiki. 20 June 2013 23:54:22  +
ModifiedDate 20 June 2013  +
Page has default formThis property is a special property in this wiki. Resource  +
SuperCategory Resource  +
Synonym A-T Children's Project  +
Categories Resource
hide properties that link here 
  No properties link to this page.
 

 

Enter the name of the page to start browsing from.

*Note: Neurolex imports many terms and their ids from existing community ontologies, e.g., the Gene Ontology. Neurolex, however, is a dynamic site and any content beyond the identifier should not be presumed to reflect the content or views of the source ontology. Users should consult with the authoritative source for each ontology for current information.